MPNE consensus 2024 on data, AI and data-dependent business models

Berlin, 31/01-2/02/2024.

Melanoma Patient Network Europe was proud to present the AI, Data, and Data-Dependent Business Models workshop that took place in Berlin between 31 January and 2 February 2024 at Fraunhofer & Heinrich Hertz Institute in the framework of the iToBoS project.

The program was co-created with partners from iToBoS, MELCAYATEF-Health and the Human Colossus Foundation, who wanted to discuss their work with the cancer patient community and create synergies.

A talented team from the iToBoS (Intelligent Total Body Scanner for Early Detection of Melanoma) joined the meeting and engaged in passionate discussions, amongst them Ariel Farkash from IBM on Data Security and Privacy, Sebastian Lapuschkin from Fraunhofer Institute on Explainable AI, Robin Renwick and Sarah Murray from Trilateral Research on the Ethics of AI, Lennart Jütte from the University of Hanover on Generative AI, and Daniel Martinez, leading the iInnovation, exploitation and communication topics.

iToBoS team. Missing from the photo the iToBoS colleagues Ariel Farkash and Daniel Martinez.

The meeting integrated perspectives of European Melanoma Patient Advocates, colleagues from MELCAYA Lukas Heinlein and David Krauss, and Johanna Furuhjelm from TEF-HEALTH, also benefiting the notable contribution of Philippe Page from Human Colossus Foundation and ​Marie-Laure Yaspo, from Max Planck Institute and Alacris Theranostics, Berlin.

During the final part of the meeting, MPNE patient advocates formulated the first consensus statements based on the different sessions of the previous days. Consensus statements are currently integrated and compiled and will be circulated back to the participants for review, revised and then circulated to the wider MPNE community for feed-back. A document capturing the discussion and the final consensus statements is in preparation and will be made publicly available in due course.

Thanks to MPNE patient advocates Bettina Ryll, Andrew Evans, Kay Curtin, Rob White, Anne Wispler and Hans Walther, Gilliosa Spurrier, Fredrik Östman and Violeta Astratinei and many others who put effort into the program, notably a memorable Pint of Science-inspired debate on Large Langue Models and the Oxford Debate and engaged into valuable discussions.

Quote: “This house believes that patients should be compelled to give up their data for whatever purpose the state sees fit; if they wish to benefit from solidarity-based universal healthcare”.

For program and updates, please consult the MPNE partner website.